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Journal Articles
- 2023
[j2]Philip van Damme
, Pablo Alarcón Moreno, César Henrique Bernabé, Alberto Cámara Ballesteros, Clémence M. A. Le Cornec, Bruna dos Santos Vieira, K. Joeri van der Velde, Shuxin Zhang, Claudio Carta, Ronald Cornet, Peter A. C. 't Hoen, Annika Jacobsen, Morris A. Swertz, Marco Roos, Nirupama Benis:
A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR. Data Sci. J. 22 (2023)- 2022
- [j1]Rajaram Kaliyaperumal, Mark D. Wilkinson, Pablo Alarcón Moreno, Nirupama Benis, Ronald Cornet, Bruna dos Santos Vieira, Michel Dumontier, César Henrique Bernabé, Annika Jacobsen, Clémence M. A. Le Cornec, Mario Prieto Godoy, Núria Queralt-Rosinach, Leo J. Schultze Kool, Morris A. Swertz, Philip van Damme, K. Joeri van der Velde, Nawel Lalout, Shuxin Zhang, Marco Roos:
Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data. J. Biomed. Semant. 13(1): 9 (2022)
Conference and Workshop Papers
- 2023
- [c1]Alberto Cámara Ballesteros, Nirupama Benis, César Henrique Bernabé, Inés de Oliveira Coelho, Clémence M. A. Le Cornec, Aylin Demir, Bruna dos Santos Vieira, Jose Antonio Ramírez, K. Joeri van der Velde, Shuxin Zhang, Ronald Cornet, Annika Jacobsen, Marco Roos, Franz Schaefer, Morris A. Swertz, Mark D. Wilkinson:
Surveyed common data access policies preferences amongst European Reference Networks. SWAT4HCLS 2023: 107-111
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