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"The NIH Office of Rare Diseases Research Patient Registry Standard: A ..."
Shamsi Daneshvari, Sarah Youssof, Philip J. Kroth (2013)
- Shamsi Daneshvari, Sarah Youssof, Philip J. Kroth:
The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry. AMIA 2013
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